(Babble.com)
October 1, 2012
WASHINGTON, DC-- [Excerpt provided by Inclusion Daily Express] In response to two major stories involving people with disabilities being denied organ transplants, in part due to their disabilities, a national coalition of fourteen different advocacy groups is pushing for change.
The National Disability Leadership Alliance met with senior staff at the U.S. Department of Health and Human Services, Division of Transplantation, to urge HHS to issue legal guidance to transplant facilities regarding their responsibilities under the Americans with Disabilities Act.
The National Disability Leadership Alliance (NDLA) is comprised of fourteen advocacy organizations that are run by and for people with disabilities At the meeting, NDLA was represented by Ari Ne'eman, president of Autistic Self-Advocacy Network; Kelly Buckland, Executive Director of the National Council on Independent Living; and Diane Coleman, president of Not Dead Yet. The group discussed organ procurement and transplantation policies, and how they impact people with disabilities of all kinds.
Among the issues discussed were ensuring meaningful consent in organ procurement efforts and addressing discrimination against people with disabilities in accessing organ transplants. NDLA's representatives raised the recent cases of Amelia Rivera and Paul Corby, individuals with developmental disabilities denied access to transplant waiting lists, and urged HHS to issue "strong and unequivocal legal guidance to prevent such acts of discrimination," according to ASAN's website.
Entire article:
Disability Advocacy Groups Push for 'Strong, Unequivocal' Legal Guidance on Organ Transplants
http://tinyurl.com/ide1001123
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