Derrek Lee of the Chicago Cubs and Wyc Grousbeck of the Boston Celtics share an uncommon bond. Each has a child with a rare genetic eye disease called Leber's congenital amaurosis, otherwise known as LCA. Rare as this condition is, these two devoted fathers would probably not be aware of their similar experiences were it not for the efforts of Dr. Edwin Stone and his research team at the University of Iowa's John and Marcia Carver Nonprofit Genetic Testing Laboratory. In their view, it is Dr. Stone who represents hope for the future of their children, and others like them. It is Dr. Stone's powerful message that "there is something we can do" that has inspired the Lee and Grousbeck families to combine their talents and their resources to support the research that is currently being done.
The initiative spearheaded by Derrek Lee and Wyc Grousbeck is known as Project 3000, named as such to reflect the estimated 3000 people in the United States living with LCA. One of the major goals of this ambitious effort is to find, and test, these 3000 people in order to advance the research. Research points to hope in terms of treatment and a possible cure, not only for LCA, but for other inherited eye diseases as well.
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